Biopsy today. Hodgkins biopsy takes five days, but it is clear that the lymph nodes do not show Hodgkins. It's either a fungal infection or Sarcoidosis.
Bob got teary. The nurse said I looked as beautiful as I will ever look in my whole life.
Got to sleep off the anesthetic. I have a hellacious sore throat and I'm waiting for the Vicodin to kick in.
Man, Sarcoid so rocks. It's not at all uncommon among Hodgkins patients -- I'm so, so happy!! You'll go on prednisone, right?
Hmmm.....let's see. Another Maureen, over at the Hodgkins board went through the same thing -- the big scare, the SCT preparation -- and then it was Sarcoid! You should reach out to her. I'll see if I can dig up her info.
Wow. WOW. WOW. WOW!!
Can you tell I'm excited???? Tell Bob he's not the only one with tears in his eyes! :)
Best news I've had all year! This is a happy day. I told you we were going to have fun this spring. And that does it. When you're better, where can we meet up? ;)
Mad, sarcoidosis is an auto-immune disease that makes internal body surfaces (lungs are classic) hard. It's something that can kill you, but usually is managed with immunosupressants. As Sarah says, it's a much better deal than Hodgkins.
I'm so happy for you. It's bizarre for a stranger to be happy for you when you're probably sick with some disease you'd never heard of 2 weeks ago, that's going to be unpleasant to treat...but there you go. Whee! There you go.
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42 Comments:
Oh my god, Maureen. I don't know what to say. I'm going to get up and do a little dance for you.
MAUREEN -- YES I'M SHOUTING!!! I'M ECSTATIC!!!!
Man, Sarcoid so rocks. It's not at all uncommon among Hodgkins patients -- I'm so, so happy!! You'll go on prednisone, right?
Hmmm.....let's see. Another Maureen, over at the Hodgkins board went through the same thing -- the big scare, the SCT preparation -- and then it was Sarcoid! You should reach out to her. I'll see if I can dig up her info.
Wow. WOW. WOW. WOW!!
Can you tell I'm excited???? Tell Bob he's not the only one with tears in his eyes! :)
You, girl, are a cancer killin' MACHINE!
Oh, I'm SO happy to hear this! Hurray!
Steve just told me the news. I am SO FRKN HAPPY, man.
It's not even camp, y'know, like cher.
It's totally, SERIOUSLY AWESOME.
Wicked awesome, Maureen!
Oh my god. Best news EVER!!!
YAAAAAAAAAAAAAAAY! That is just the best best best news ever!
YAY!
Awesome awesome awesome. That is such great news!
WOW, that is AMAZING news! Completely AWESOME.
I'm doing the Peanuts happy dance for you! That's wonderful!
Yes! That's so wonderful :-)
I'm SO glad for you!
That's great!
Andy
The trout smiles :)
That's the best news! I'm so happy to hear it.
Whew! This makes me very very happy.
This is a relief and I'm very glad to hear it. I propose a toast.
Three quiet cheers sos you can rest.
Let's all have a vicodin moment in solidarity.
Woo-hoo!
Clearly, Hodgkins is scared of you.
Yee haw! Great, great, great, great news.
Maureen!
I'm so happy and relieved for you, I've come to post it in your blog because Elsewhere is afflicted again with the Future Posting Bug.
Wow. Wow wow wow wow wow.
I am decorating with sheets all over my fucking house!
"Win the lottery"?
You won a lottery you hadn't known you'd entered; one you didn't know you were eligible for. The metaphor isn't strong enough for the reality.
What was the term in Dickens?
"Returned to life"? That's more like it.
Maureen, that is wonderful news. I'd take that over the fugu anytime!
Oh Maureen! Grreeeeeat news.
Ellen Datlow
Maureen -- If we can dance, shout and cry all at the same time, we're doin' it this morning. Wow! Sushi tonight?
Marjorie and Walt
Okay, my day is made. What outstanding news to wake up to.
So. Freaking. Awesome. !!
Oh wow.
Oh that is such good news.
I am so pleased for you.
Yay! Yay! Yay!
Oh happy, happy, joy, joy. Such good news...
--claire eddy
Maureen -
Truly terrific news.
Fraptious day! (So now do you have to recontact everyone for those canceled appearances?)
Best news I've had all year! This is a happy day. I told you we were going to have fun this spring. And that does it. When you're better, where can we meet up? ;)
Stephanie Dray
Oh, hot damn. I am so happy for you. What the hell is Sarcoid, and how do you chase it away, and who cares anyway, cause it isn't Hodgkins?
Oh, man. I am glad.
I'm so happy to hear this! Hooray! Happy dance!
Oh, I bet you're going to look yet more beautiful in times to come. Wonderful, wonderful news.
Rejoicing for you and with you, YES!!!
Wonderful news, Maureen!
Mad, sarcoidosis is an auto-immune disease that makes internal body surfaces (lungs are classic) hard. It's something that can kill you, but usually is managed with immunosupressants. As Sarah says, it's a much better deal than Hodgkins.
I'm so happy for you. It's bizarre for a stranger to be happy for you when you're probably sick with some disease you'd never heard of 2 weeks ago, that's going to be unpleasant to treat...but there you go. Whee! There you go.
Best wishes,
Adrian
Coming late to the party, I must add my heartfelt "Yahooooo!!!" to this wonderful news. Rock on, Maureen.
^^ nice blog!! ^@^
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