A Bad Two Weeks
I had made the mistake of checking the internet in the intervening weeks, and had pretty much convinced myself I'd be dead by summer, so the visit was actually quite good. He's very optimistic. He's still talking cure. The only thing between me and that cure is a stem cell transplant and high dose chemo.
So I have officially prepared. I made Bob buy me an iPod. I figure if I'm going to have to spend some time in isolation, I might as well be entertained.
I have to have a biopsy in a week or two, and a bunch of exams, and then in March I'll start an abbreviated course of chemo. Then I'll probably have the transplant in April (it uses my own stem cells from my own blood stream.)
I'd post more now but I'm going to play with my iPod first.
30 Comments:
What Richard said. We're pulling for you. Love, Christopher (KY, not Japan).
Oh dear. But what they said. You will get through this with as much grace as you did before. HUGS.
Fuck cancer!
I'm glad the doc's optomistic. Which iPod did you get?
What David said, dammit.
Wishing strongly for all possible good results, but how horribly irritating that you have to go through all this again.
Jo Walton
Best thoughts here. Keep fighting!
Maureen -- Christopher's friend and fellow Hodgkins patient Russ here. I'm so sorry to hear about the relapse. You're going to be fine. I've heard about HL patients who relapsed more than once and are doing fine now. You'll beat it with the stem cell transplant, I know it. As for me, my January CT scan was clear, but I know a relapse is still possible. I'm pulling for you. rw
Dammit! What everyone said. You'll kick it.
Ellen
Stay strong. You can make it through whatever life throws at you, I'm sure.
Sorry to hear that you're facing it again. Stay strong! I ride in the Pan Mass Challenge every year (for the Dana Farber Cancer Institute); I'll add you to my list of "riding fors".
Oh man. Good luck, keep fighting!
Oh, well, poop. And, yes, ditto on the Fuck Cancer.
Oh I'm so sorry, sweetie, but you're going to beat this, and you know a whole lot of people are going to love you through it, so don't give up. Remember your middle initial.
Hey, Maureen -- so very, very sorry. What a terrible Wednesday. There will be a happy ending, but why the seven point plot first? Call anytime you feel like talking. We all love and need you --
Best wishes for a speedy recovery!
-- Steve
You are absolutely luminous and mischievous. I am sending my love and strength. You rock utterly.
You don't really know me, but I play ARGs and played LCP. My thoughts and prayers are with you!
Aw crap, I'm really sorry to hear about this. It totally sucks. But you have a lot of people, me included, sending good vibes your way. You'll kick its ass.
And have fun with your iPod.
Hugs and love best wishes!
I know you'll come out on top.
If it's any comfort -- and I suspect it may not be -- I have an uncle and a cousin who both survived Hodgkins. And that was before they had all this fancy-schmancy stem cell technology.
(Yeah, that didn't really help.)
Thoughts and prayers.
Oh hell and damnation. I'm glad the doctor is optimistic, but I wish he didn't need to be. You will beat this. Put lots of good music on the iPod and listen the Dickens out of it...
Aw, hell. I'm so sorry you have to go through this. Know that we're all rootin' for you.
I drew a lot of positive energy from your work - I hope that some of it can now make its way back to you.
Shit!
I'm very unhappy that you have to go through this, and very glad that your prognosis is good. I'll be thinking about you and sending good chi in your direction often.
As for your iPod, you should check out the Apple Music Store and see if there're any podcasts that look interesting to you. Once you find one, you just click the Subscribe button and get them automatically downloaded.
I've never commented here before, but I've been reading for a while; I adore your writing. Just wanted to say that my thoughts are with you, too.
Best of luck with the stem cell transplant. You can do it.
You can do it. a great deal of people have you in their thoughts.
the iPod sounds like a great start.
Best wishes for a successful treatment and recovery.
Andy
Maureen, I'm sorry to hear about the relapse. The wagons are circling for you.
You've beaten this before, Maureen. You'll beat it this time, too.
Oh, Maureen. I write this with tears in my eyes. I am just so, so sorry that you've relapsed. (I have one active node and am in "watch and wait" myself.)
It's been a while since I've visited your blog, but today I thought of you for some reason. What a bitter shock to read that you're facing the beast again.
As a former daily reader, and having shared this experience with you around the same time, I have some observations: Maureen, you are wise, and brave, and strong. You are not alone, you are loved, and you are very, very clever. You can laugh in the face of things that are fearsome, and cry in response to beauty. You are a person of wonder and intellect, heart and might. You beat this once, and you'll do it again. I invite you to join the wonderful community at lymphoma.com's Hodgkins message board. There are a LOT of people there who have been through the experience you're facing, and they have a lot of knowledge and wisdom to share. I think you would benefit from their perspective on the other side of the SCT. (Both auto and allo.) Please join us -- or at least read the posts there, search the database for relevant information, and look at how well just about everybody's doing! Here's the link: http://forums.webmagic.com/ubbthreads/postlist.php?Cat=0&Board=UBB1&page=0
I send you strength and resolve, and truckloads of positive vibes. I'm with you, girl! (Along with a slew of others who think the world of you and care for you a great deal.)
Kick some ass, Maureen. :)
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